tag:blogger.com,1999:blog-4450266887563616723.post7677041300295098851..comments2023-06-11T07:40:27.845-05:00Comments on Action Alz: Life Lessons from the Dementia Care ConferenceAction Alzhttp://www.blogger.com/profile/00922064899074051295noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4450266887563616723.post-29327549933341192622007-10-02T09:09:00.000-05:002007-10-02T09:09:00.000-05:00I completely agree with you when you say the peopl...I completely agree with you when you say the people with alzheimers have such a positive attitude. My identical twin sister, Sharon Simpson, was diagnosed in 2001 at the young age of 55. She lost her battle Jan. 6, 2007 at the age of 61. She had such a positive attitude, she never let it get her down. All the way home from Mayo Clinic where she was diagnosed, I cried, she held my hand and said it would be ok. <BR/>Through her disease she just accepted the things she could no longer do. She was happy. Much happier and accepting than I was. <BR/> <BR/>My sister and I were able to meet Chris Bakowski who I also know was at the Chicago Conference. She is an amazing woman. I am amazed at what she is still able to do. She was actually diagnosed right before my sister. I think this disease moves faster in some than in others, with my sister it seemed to go very fast. <BR/> <BR/>I miss my sister more than words can say. I've lost part of my identity. It is hard to put into words the connection of twins, only other twins would understand. She was half of my whole. There are days I don't feel this grief will ever end. I feel I actually started grieving her when she was diagnosed, because with this disease you know there is never a good ending. I was amazed at her wake at some of the comments, most people don't know that this disease is actually a killer, most of them think you just loose your memory. <BR/> <BR/>I could go on and on, but just wanted to post a comment. I really enjoyed reading what you had to say.<BR/> <BR/>Sheryl HallAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4450266887563616723.post-27754383706908730952007-09-22T14:25:00.000-05:002007-09-22T14:25:00.000-05:00Lisa, Your words about our members speak words be...Lisa,<BR/> Your words about our members speak words beyond boundaries. The elegance and thoughtfulness of your knowledge, understanding and concern of the plight of us all is a welcomed breathe in this world that seems to ignore us. Thank you for these messages to the outer world...and hope that this disease will become more main stream for earlier diagnosis and intervention.<BR/><BR/>Candy HarrisonMariposa_Lilyhttps://www.blogger.com/profile/13753532555207164767noreply@blogger.comtag:blogger.com,1999:blog-4450266887563616723.post-16675205193861228102007-09-19T08:22:00.000-05:002007-09-19T08:22:00.000-05:00A lot depends on what question is asked. If one as...A lot depends on what question is asked. If one asks "how does it feel to have this terrible disease" one can get unhappy answers. If one asks - as Lisa does - "how are you enjoying your life" then one can get happy answers. There should be much more focus on ways people living with AD can enjoy their lives.Anonymousnoreply@blogger.com